{"id":54309,"date":"2024-07-02T09:12:08","date_gmt":"2024-07-02T09:12:08","guid":{"rendered":"https:\/\/www.eaete.gr\/?p=54309"},"modified":"2024-07-02T09:12:08","modified_gmt":"2024-07-02T09:12:08","slug":"%cf%84%ce%bf-%cf%84%ce%b1%ce%be%ce%af%ce%b4%ce%b9-%cf%84%cf%89%ce%bd-%cf%83%cf%80%ce%ac%ce%bd%ce%b9%cf%89%ce%bd-%ce%b1%cf%83%ce%b8%ce%b5%ce%bd%cf%8e%ce%bd-%ce%ad%cf%89%cf%82-%cf%84%ce%b7","status":"publish","type":"post","link":"https:\/\/eaete.com.gr\/?p=54309","title":{"rendered":"\u03a4\u03bf \u03c4\u03b1\u03be\u03af\u03b4\u03b9\u00a0\u03c4\u03c9\u03bd \u03c3\u03c0\u03ac\u03bd\u03b9\u03c9\u03bd \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd\u00a0\u03ad\u03c9\u03c2 \u03c4\u03b7 \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7 \u03b4\u03b9\u03b1\u03c1\u03ba\u03b5\u03af\u00a0\u03ba\u03b1\u03c4\u03ac \u03bc\u03ad\u03c3\u03bf \u03cc\u03c1\u03bf 5 \u03c7\u03c1\u03cc\u03bd\u03b9\u03b1!\u00a0"},"content":{"rendered":"<p><strong>\u03a4\u03b1 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03ad\u03c3\u03bc\u03b1\u03c4\u03b1 \u03b4\u03b9\u03b1\u03b4\u03b9\u03ba\u03c4\u03c5\u03b1\u03ba\u03ae\u03c2 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1\u03c2 \u03ad\u03b4\u03b5\u03b9\u03be\u03b1\u03bd \u03b3\u03b9\u03b1 \u03c4\u03b1 \u03ac\u03c4\u03bf\u03bc\u03b1 \u03c0\u03bf\u03c5 \u03b6\u03bf\u03c5\u03bd \u03bc\u03b5 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03c0\u03ac\u03b8\u03b7\u03c3\u03b7 \u03cc\u03c4\u03b9 \u03c7\u03c1\u03b5\u03b9\u03ac\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03ba\u03b1\u03c4\u03b1 \u03bc\u03ad\u03c3\u03bf \u03cc\u03c1\u03bf 5 \u03c7\u03c1\u03cc\u03bd\u03b9\u03b1 \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03bb\u03ac\u03b2\u03bf\u03c5\u03bd \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7. \u03a4\u03b7\u03bd \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1 \u03b4\u03b9\u03b5\u03be\u03ae\u03b3\u03b1\u03b3\u03b5 \u03b7 \u03bf\u03bc\u03ac\u03b4\u03b1 \u03c4\u03bf\u03c5 \u03c0\u03c1\u03bf\u03b3\u03c1\u03ac\u03bc\u03bc\u03b1\u03c4\u03bf\u03c2 <a href=\"https:\/\/www.eurordis.org\/publications\/time-to-diagnosis-and-determinants-of-diagnostic-delays-of-people-living-with-a-rare-disease-results-of-a-rare-barometer-retrospective-patient-survey\/\" target=\"_blank\">Rare Barometer<\/a> \u03c4\u03b7\u03c2 <a href=\"Crossworld\" target=\"_blank\">EURORDIS<\/a>, \u03c3\u03b5 13.000 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03b1\u03c0\u03cc 104 \u03c7\u03ce\u03c1\u03b5\u03c2, \u03bc\u03b5\u03c4\u03b1\u03c6\u03c1\u03ac\u03c3\u03c4\u03b7\u03ba\u03b5 \u03c3\u03b5 27 \u03b3\u03bb\u03ce\u03c3\u03c3\u03b5\u03c2 \u03bc\u03af\u03b1 \u03b5\u03ba \u03c4\u03c9\u03bd \u03bf\u03c0\u03bf\u03af\u03c9\u03bd \u03ba\u03b1\u03b9 \u03b7 \u03b5\u03bb\u03bb\u03b7\u03bd\u03b9\u03ba\u03ae. <\/strong><\/p>\n<p><strong>\u03a1\u03bf\u03cd\u03bb\u03b1 \u03a3\u03ba\u03bf\u03c5\u03c1\u03bf\u03b3\u03b9\u03ac\u03bd\u03bd\u03b7<\/strong><\/p>\n<p>\u0397 <strong>\u0395\u03bb\u03bb\u03b7\u03bd\u03b9\u03ba\u03ae \u0395\u03c4\u03b1\u03b9\u03c1\u03b5\u03af\u03b1 \u0391\u03bd\u03c4\u03b9\u03c1\u03b5\u03c5\u03bc\u03b1\u03c4\u03b9\u03ba\u03bf\u03cd \u0391\u03b3\u03ce\u03bd\u03b1<\/strong> \u03b5\u03af\u03bd\u03b1\u03b9 \u03bc\u03ad\u03bb\u03bf\u03c2 \u03c4\u03b7\u03c2 EURORDIS, \u03b4\u03b5\u03b4\u03bf\u03bc\u03ad\u03bd\u03bf\u03c5 \u03cc\u03c4\u03b9 \u03bf\u03b9 \u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b5\u03c2 \u03b1\u03c0\u03cc \u03c4\u03b9\u03c2 \u03c1\u03b5\u03c5\u03bc\u03b1\u03c4\u03b9\u03ba\u03ad\u03c2 \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03b9\u03c2 \u03b1\u03bd\u03ae\u03ba\u03bf\u03c5\u03bd \u03c3\u03c4\u03b9\u03c2 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b5\u03c2 \u03c0\u03b1\u03b8\u03ae\u03c3\u03b5\u03b9\u03c2.<\/p>\n<p>\u03a3\u03c5\u03b3\u03ba\u03b5\u03ba\u03c1\u03b9\u03bc\u03ad\u03bd\u03b1, \u03c4\u03b1 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03ad\u03c3\u03bc\u03b1\u03c4\u03b1 \u03c4\u03b7\u03c2 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1\u03c2 \u03c4\u03b7\u03c2 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1\u03c2 \u03ae\u03c4\u03b1\u03bd:<\/p>\n<ul>\n<li><strong>\u03a4\u03b1 \u03ac\u03c4\u03bf\u03bc\u03b1 \u03c0\u03bf\u03c5 \u03b6\u03bf\u03c5\u03bd \u03bc\u03b5 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03c0\u03ac\u03b8\u03b7\u03c3\u03b7 \u03c7\u03c1\u03b5\u03b9\u03ac\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03ba\u03b1\u03c4\u03ac \u03bc\u03ad\u03c3\u03bf \u03cc\u03c1\u03bf 5\u00a0\u03c7\u03c1\u03cc\u03bd\u03b9\u03b1 \u03b3\u03b9\u03b1 \u03bd\u03b1 \u03bb\u03ac\u03b2\u03bf\u03c5\u03bd \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7<\/strong>, \u03ba\u03b1\u03b9 <strong>\u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03b1 \u03b1\u03c0\u03cc 10\u00a0\u03c7\u03c1\u03cc\u03bd\u03b9\u03b1<\/strong> \u03b1\u03c0\u03cc \u03cc\u03c4\u03b1\u03bd \u03b5\u03bc\u03c6\u03b1\u03bd\u03b9\u03c3\u03c4\u03bf\u03cd\u03bd \u03c4\u03b1 \u03c0\u03c1\u03ce\u03c4\u03b1 \u03c3\u03c5\u03bc\u03c0\u03c4\u03ce\u03bc\u03b1\u03c4\u03b1 \u03ba\u03b1\u03c4\u03ac \u03c4\u03b7 \u03b4\u03b9\u03ac\u03c1\u03ba\u03b5\u03b9\u03b1 \u03c4\u03b7\u03c2 \u03b5\u03c6\u03b7\u03b2\u03b5\u03af\u03b1\u03c2.<\/li>\n<li><strong>73% <\/strong>\u03c4\u03c9\u03bd \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03ae\u03b4\u03b7 \u03ad\u03c7\u03bf\u03c5\u03bd \u03bb\u03ac\u03b2\u03b5\u03b9 <strong>\u03b5\u03c3\u03c6\u03b1\u03bb\u03bc\u03ad\u03bd\u03b7 \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7<\/strong><\/li>\n<li><strong>25%<\/strong> \u03ad\u03c0\u03c1\u03b5\u03c0\u03b5 \u03bd\u03b1 \u03bb\u03ac\u03b2\u03bf\u03c5\u03bd \u03b3\u03bd\u03c9\u03bc\u03ac\u03c4\u03b5\u03c5\u03c3\u03b7 \u03b1\u03c0\u03cc <strong>\u03c0\u03b5\u03c1\u03b9\u03c3\u03c3\u03cc\u03c4\u03b5\u03c1\u03bf\u03c5\u03c2 \u03b1\u03c0\u03cc 8 \u03b5\u03c0\u03b1\u03b3\u03b3\u03b5\u03bb\u03bc\u03b1\u03c4\u03af\u03b5\u03c2 \u03c5\u03b3\u03b5\u03af\u03b1\u03c2<\/strong> \u03c0\u03c1\u03bf\u03c4\u03bf\u03cd \u03bb\u03ac\u03b2\u03b5\u03c4\u03b5 \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7.<\/li>\n<li><strong>\u039f\u03b9 \u03b3\u03c5\u03bd\u03b1\u03af\u03ba\u03b5\u03c2 \u03c0\u03bf\u03c5 \u03b6\u03bf\u03c5\u03bd \u03bc\u03b5 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03c0\u03ac\u03b8\u03b7\u03c3\u03b7 \u03b4\u03b9\u03b1\u03b3\u03b9\u03b3\u03bd\u03ce\u03c3\u03ba\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b1\u03c1\u03b3\u03cc\u03c4\u03b5\u03c1\u03b1<\/strong> \u03b1\u03c0\u03cc \u03c4\u03bf\u03c5\u03c2 \u03ac\u03bd\u03b4\u03c1\u03b5\u03c2<\/li>\n<li><strong>\u0397 \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7 \u03b3\u03af\u03bd\u03b5\u03c4\u03b1\u03b9 \u03c4\u03b1\u03c7\u03cd\u03c4\u03b5\u03c1\u03b1 \u03cc\u03c4\u03b1\u03bd \u03bf\u03b9 \u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2 \u03c0\u03b1\u03c1\u03b1\u03c0\u03ad\u03c0\u03bf\u03bd\u03c4\u03b1\u03b9 \u03c3\u03b5 \u039a\u03ad\u03bd\u03c4\u03c1\u03bf \u0395\u03be\u03b5\u03b9\u03b4\u03af\u03ba\u03b5\u03c5\u03c3\u03b7\u03c2<\/strong>, \u03c9\u03c3\u03c4\u03cc\u03c3\u03bf \u03c0\u03bf\u03c3\u03bf\u03c3\u03c4\u03cc <strong>40% <\/strong>\u03b1\u03c5\u03c4\u03ce\u03bd \u03b4\u03b5\u03bd \u03c0\u03b1\u03c1\u03b1\u03c0\u03b5\u03bc\u03c6\u03b8\u03b7\u03ba\u03b1\u03bd \u03c0\u03bf\u03c4\u03ad \u03c3\u03b5 \u03c4\u03ad\u03c4\u03bf\u03b9\u03b5\u03c2 \u03b5\u03be\u03b5\u03b9\u03b4\u03b9\u03ba\u03b5\u03c5\u03bc\u03ad\u03bd\u03b5\u03c2 \u03bd\u03bf\u03c3\u03bf\u03ba\u03bf\u03bc\u03b5\u03b9\u03b1\u03ba\u03ad\u03c2 \u03bc\u03bf\u03bd\u03ac\u03b4\u03b5\u03c2.<\/li>\n<\/ul>\n<p>\u0395\u03c0\u03af\u03c3\u03b7\u03c2, \u03c4\u03b1 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03ad\u03c3\u03bc\u03b1\u03c4\u03b1 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u03b4\u03b9\u03ac\u03b3\u03bd\u03c9\u03c3\u03b7 \u03b1\u03c3\u03b8\u03b5\u03bd\u03ce\u03bd \u03bc\u03b5 \u03c3\u03c0\u03ac\u03bd\u03b9\u03b1 \u03c0\u03ac\u03b8\u03b7\u03c3\u03b7 \u03ae\u03c4\u03b1\u03bd:<\/p>\n<ul>\n<li><strong>60%<\/strong> \u03ad\u03c7\u03bf\u03c5\u03bd \u03b4\u03b9\u03b1\u03b3\u03bd\u03c9\u03c3\u03c4\u03b5\u03af \u03bb\u03b1\u03bd\u03b8\u03b1\u03c3\u03bc\u03ad\u03bd\u03b1 \u03bc\u03b5 \u03ac\u03bb\u03bb\u03b7 \u03c3\u03c9\u03bc\u03b1\u03c4\u03b9\u03ba\u03ae \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b1.<\/li>\n<li><strong>40%<\/strong> \u03b4\u03b5\u03bd \u03b5\u03c7\u03bf\u03c5\u03bd \u03c0\u03b1\u03c1\u03b1\u03c0\u03b5\u03bc\u03b8\u03b5\u03af \u03c3\u03b5 \u03ba\u03ad\u03bd\u03c4\u03c1\u03bf \u03b5\u03bc\u03c0\u03b5\u03b9\u03c1\u03bf\u03b3\u03bd\u03c9\u03bc\u03bf\u03c3\u03cd\u03bd\u03b7\u03c2.<\/li>\n<li><strong>60%<\/strong> \u03ad\u03c7\u03bf\u03c5\u03bd \u03b4\u03b9\u03b1\u03b3\u03bd\u03c9\u03c3\u03c4\u03b5\u03af \u03bb\u03b1\u03bd\u03b8\u03b1\u03c3\u03bc\u03ad\u03bd\u03b1 \u03bc\u03b5 \u03ac\u03bb\u03bb\u03b7 \u03c8\u03c5\u03c7\u03bf\u03bb\u03bf\u03b3\u03b9\u03ba\u03ae \u03b1\u03c3\u03b8\u03ad\u03bd\u03b5\u03b9\u03b1 \u03ae \u03c4\u03b1 \u03c3\u03c5\u03bc\u03c0\u03c4\u03ce\u03bc\u03b1\u03c4\u03ac \u03c4\u03bf\u03c5\u03c2 \u03b4\u03b5\u03bd \u03ad\u03c7\u03bf\u03c5\u03bd 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